Marking the Rare Disease Day 2016

 

 

SUPRAM, NORBS and IMGGI

 

On the occasion of Rare Disease Day 2016 (29th February), Association of Lawyers for Medical and Health Law SUPRAM is organizing with partners a number of events:

 

 

 

SUPRAM LECTURE: On Monday 29 February, on the very Rare Disease Day, at 5 pm, in the Hall of Institute of Social Sciences, Dr. Hajrija Mujovic-Zornic and Dr. Dragan Miljus will give a lecture on „Medical-legal aspects of diagnostics and treatment of rare diseases in Serbia“. This lecture is accredited by the Serbian Health Council for members of Physicians’ Chamber, Nurses’ Chamber, Dentists’ Chamber and the attendees are awarded 2 points.

 

CONFERENCE AT THE FACULTY OF MEDICINE: On Tuesday, 1 March at 11 am, in the Dean’s Hall of the Faculty of Medicine, University of Belgrade, a conference will take place entitled „United for the patients with rare diseases – access to services in Serbia and strategic changes“, which is jointly organized by SUPRAM, National organization for rare diseases NORBS and Institute for molecular genetics and genetic engineering of the Belgrade University IMGGI. At the conference, presented will be the results of the project „Equity in policies and services for persons with rare diseases“ which is financially supported by the European Union and the Serbian Office for Cooperation with the Civil Sector. The conference is taking place under the sponsorship of the Ministry of Health, and with support from the Ministry of labor, employment, veteran and social affairs.

 

CONTINUING MEDICAL EDUCATION AT THE CLINICAL CENTRE OF SERBIA: On Thursday, 3 March at 9.30 am, in the Hall of the Clinical Centre of Serbia, a course in continuing education will take place under the title „Rare diseases in the Serbian health care system: access to health care services and patients’ rights“, that is accredited by the Serbian Health Council for members of all health care chambers and the attendees are awarded 6 points. Education is being performed under the project „Equity in policies and services for persons with rare diseases“ which is financially supported by the European Union and the Serbian Office for Cooperation with the Civil Sector.

 

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